만성폐쇄성폐질환자 가족의 보호부담에 관한 연구

Background: Chronic obstructive pulmonary disease (COPD) is a major health problem resulting in significant burden for patients and families. However, family caregivers’ burden has not been well recognized. The objectives of this study were to evaluate the level of caregivers’ burden and to explore the related factors based on family, patient, and social support factors. Methods: A face-to-face interview with 86 family caregivers who had been taking care of COPD patients was conducted. The participants answered a self-administered questionnaire. The questionnaire included the level of family caregivers’ burden, health status and the relationship within the family, functional limitation of patients perceived by family caregivers and the social support. Results: The level of caregivers’ burden among participants was considerably high. Risk factors for caregivers’ burden included low educational level of family caregivers, low family income, hours of caregiving, and functional limitation of the patients. Protective factors for caregivers’ burden were good relationship within the family and support from other family members or friends. Conclusion: It is proved that family caregivers are facing significant burden in taking care of COPD patients. To reduce family caregivers’ burden, it is necessary to address socioeconomic status of the family and to provide various community resources including financial support and nursing services.

keywords: Pulmonary Disease, Chronic Obstructive, Family Nursing, Cost of Illness

Reference

1. Murray CJ, Lopez AD. Alternative projections of mortality and disability by cause 1990-2020: global burden of disease study. Lancet 1997;349:1498-504.

2. Mannino DM, Buist AS. Global burden of COPD: risk factors, prevalence, and future trends. Lancet 2007;370:765-73.

3. Fehrenbach C. NICE guidelines for chronic obstructive pulmonary disease--a review. Nurs Times 2004;100:48-51.

4. Midgley C. Chronic obstructive pulmonary disease: a forgotten killer. 1st ed. Oxford: Oxford University Press; 2008.

5. Washio M, Inoue H, Kiyohara C, Matsumoto K, Nakanishi Y, Arai Y, et al. Depression among caregivers of patients with chronic obstructive pulmonary disease.Int Med J 2003;10:255-9.

6. Takata S, Washio M, Moriwaki A, Tsuda T, Nakayama H, Iwanaga T, et al. Burden among caregivers of patients with chronic obstructive pulmonary disease with long-term oxygen therapy. Int Med J 2008;15:53-7.

7. Bergs D. The hidden client-women caring for husbands with COPD: their experience of quality of life. J Clin Nurs 2002;11:613-21.

8. Suh MH, Oh KS. A Study of well-being in caregivers caring for chronically ill family members. J Nurs Acad Soc 1993;23:467-86.

9. Kim EK, Lee EJ, Sohn J, Lee BC. Family caregiver burden of stroke patient. J Korean Geriatr Soc 2003;7:101-24.

10.

10. Rhee KO, Lee MJ. A study on caregiving burden among family caregivers of impaired elderly. J Korean Geriatr Soc 2000;20:215-28.

11.

11. Oh KO, Hong CS. The burden and mental health of family caregiver with chronic mentally ill patients in community. J Korean Acad Psychiatr Ment Health Nurs 2000;9:499-513.

12.

12. Zarit SH, Orr NK, Zarit JM. Families under stress: caring for the patients with Alzheimer's Disease and other related disorders. 1st ed. New York: University Press;1985.

13.

13. Novak M, Guest C. Application of a multidimensional caregiver burden inventory. Gerontologist 1989;29:798-803.

14.

14. Brodman K, Erdmann AJ Jr, Lorge I, Wolfe HG,Broadbent TH. The Cornell medical index-health questionnaire.II. As a diagnostic instrument. J Am Med Assoc 1951;145:152-7.

15.

15. Moos RH, Moos BS. Family environment scale manual.3rd ed. Palo Alto, CA: Consulting Psychologists; 1994.

16.

16. Stewart AL, Ware JE, Brook RH. Conceptualization and measurement of health for adults in the health insurance study: physical health in terms of functioning.1st ed. Santa Monica, CA: RAND Corporation; 1978.

17.

17. Park SJ. Symptom experience and quality of life in patients with chronic lung disease: with a special reference to bronchial asthma and bronchiectasis. J Korean Acad Adult Nurs 2002;14:470-8.

18.

18. Park SY, O WH, Jang HJ, Lim JW, Jo JH. A study on the family caregiver's burden of burn patients. J Korean Burn Soc 2001;4:91-108

19.

19. Yang S, Jang MH. Awareness of need and degree of participation for the role of family members as psychiatric patients treatment partners, and the burden in chronic mentally ill patients family. J Korean Acad Psychiatr Ment Health Nurs 2000;9:94-111.

20.

20. Wachtel MS. Family poverty accounts for differences in lower-extremity amputation rates of minorities 50 years old or more with diabetes. J Natl Med Assoc 2005;97:334-8.

21.

21. House JS. Understanding social factors and inequalities in health: 20th century progress and 21st century prospects. J Health Soc Behav 2002;43:125-42.

22.

22. Clipp EC, George LK. Caregiver needs and patterns of social support. J Gerontol 1990;45:S102-11.

23.

23. Bulger MW, Wandersman A, Goldman CR. Burdens and gratifications of caregiving: appraisal of parental care of adults with schizophrenia. Am J Orthopsychiatry 1993;63:255-65.

24.

24. Kim CK, Kim JW, Seo JM, Lee GZ, Kim GJ, Byun WT.Family burden of schizophrenics in the primary caregivers and siblings. J Korean Neuropsychiatr Assoc 2000;39:113-27.

25.

25. Zarit SH, Todd PA, Zarit JM. Subjective burden of husbands and wives as caregivers: a longitudinal study.Gerontologist 1986;26:260-6.

26.

26. Lazarus RS, Folkman S. Stress, appraisal, and coping.1st ed. New York: Springer; 1984.

27.

27. Arai Y. Washio M. Burden felt by family caring for the elderly members needing care in southern Japan. Aging Ment Health 1999;3:158-64.

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Article Contents

Vol.69 No.6

Abstract

Reference

Tuberculosis & Respiratory Diseases