Psychosocial Characteristics of Girls with Turner Syndrome and Age-matched Healthy Control

최부열; 김덕희; 정경미; 박미정; 이은별

doi:10.18205/kpa.2010.15.3.009

Article Contents

Prev Next

e-Submission

Vol.15 No.3

Citation
Share

Psychosocial Characteristics of Girls with Turner Syndrome and Age-matched Healthy Control

The Korean Journal of Woman Psychology / The Korean Journal of Woman Psychology, (P)1229-0726;

2010, v.15 no.3, pp.489-507

https://doi.org/10.18205/kpa.2010.15.3.009

& (2010). Psychosocial Characteristics of Girls with Turner Syndrome and Age-matched Healthy Control. The Korean Journal of Woman Psychology, 15(3), 489-507, https://doi.org/10.18205/kpa.2010.15.3.009

copy

Abstract

This study examined the psychosocial characteristics of Korean girls with Turner Syndrome(TS) compared with those of age-matched, healthy control group. 36 girls with TS aged from 10 to 18 years and their parents were recruited. Also, 36 age-matched healthy girls and their parents participated in the study for the control group. Participants completed the Korean-Child Behavior Checklist(K-CBCL), Self Concept Inventory(SCI), Children's Depression Inventory(CDI), the Revised Children's Manifest Anxiety Scale (RCMAS), and Pediatric Quality of Life InventoryTM Version 4.0(PedsQLTM 4.0). Girls with TS reported more total behavior problems, internalizing behavior problems, immaturity, thought problems, and inattention than the control group. Also, significantly more severe depression, lower self-concept and quality of life were reported by girls with TS. Meanwhile, no significant difference in anxiety between girls with TS and the healthy control was found. The results of the study support previous studies. In addition, implications and limitations of the study are discussed.

keywords: Turner Syndrome(TS), children, adolescents, psychosocial adjustment, 터너증후군, 아동청소년, 심리사회적응

Reference

길주현, 이서정, 정경미 (2007). 공격적이고 산만한 행동을 보이는 터너증후군 아동에 대한 다른행동 차별강화와 보상의 효과: 증례 보고. 인지행동치료, 7(1), 67-78.

김덕희 (2003). 터너증후군. 대한내분비학회지, 18, 552-560.

백미정 (1998). 과도한 떼쓰기. 특수교육 사례연구, 17, 19-27.

오경자, 이혜련, 하은혜, 홍강의 (1997). K-CBCL 아동. 청소년 행동평가척도. 중앙적성출판사.

이경화, 고진영 (2006). 자아개념검사. 학지사.

조수철, 이영식 (1990). 한국형 소아 우울 척도의 개발. 신경정신의학, 29(4), 943-955.

최진숙, 조수철 (1990). 소아 불안의 측정-RCMAS의 신뢰도와 타당도 검사. 신경정신의학, 29(3), 691-701.

Achenbach, T. M. (1991). Child behavior checklist/4-18.

Amundson, E., Wide-Boman, U., Barrenas, M. L., Bryman, I., & Landin-Wilhelmsen, L. (2010). Impact of growth hormone therapy on quality of life in adults with turner syndrome. Journal of Clinical Endocrinology & Metabolism, 10. 1355-1359.

10.

Bideci, A., Evliyaoglu, O., Cetinkaya, E., Aycan, Z., Berberoglu, M., Siklar, Z., et al. (2008). Life quality in girls with Turner Syndrome a cross sectional study. Hormone Research, 70, 178.

11.

Boman, U. W., Bryman, I., Hailing, K., & Moller, A. (2001). Women with turner syndrome: psychological well-being, self-rated health and social life. Journal of Psychosomatic Obstetrics & Gynecology, 22(2), 113-122.

12.

Carel, J. C., Ecosse, E., Bastie-Sigeac, I., Cabrol, S., Tauber, M., Leger, J., et al. (2005). Quality of life determinants in young women with turner’s syndrome after growth hormone treatment: results of the StaTur population-based cohort study. Journal of Clinical Endocrinology & Metabolism, 90(4). 1992-1997.

13.

Christopoulos, P., Deligeoroglou, E., Laggari, V., Christogiorgos, S., & Creatsas, G. (2008). Psychological and behavioural aspects of patients with turner syndrome from childhood to adulthood: a review of the clinical literature. Journal of Psychosomatic Obstetrics & Gynecology, 29(1), 45-51.

14.

Forrest, C, B., Shipman, S, A., Dougherty, D, & Miller, M, R. (2003). Outcomes research in pediatric settings: recent trends and future directions. Pediatrics, 111, 171-178.

15.

Guyatt, G, H., Feeny, D, H., & Patrick, D, L. (1993). Measuring health-related quality of life. Annals of Internal Medicine, 118(8), 622-629.

16.

Harter, S. (2001). The construction of the self: a developmental perspective. New York: Guilford Press.

17.

Hjerrild, B. E., Mortensen, K. H., & Gravholt, C. H. (2008). Turner syndrome and clinical treatment. British Medical Bulletin, 10, 1-17.

18.

Ingerski, L. M., Modi, A, C., Hood, K. K., Pai, A. L., Zeller, M., Piazza-Waggoner, C., et al. (2009). Health-related quality of life across pediatric chronic conditions. Journal of Pediatrics, 156(4), 639-644.

19.

Kilic, B. G., Ergur, A. T., & Ocal, G. (2005). Depression, levels of anxiety and self-concept in girls with turner's syndrome. Journal of Pediatric Endocrinology & Metabolism, 18(11), 1111–1117.

20.

Kook, S. H., & Varni, J. W. (2008). Validation of the Korean version of the pediatric quality of life inventory 4.0(PedsQL) generic core scales in school children and adolescents using the Rasch model. Health and Quality of Life Outcomes, 6(41). 1-15.

21.

Kovacs, M. (1985). The children’s depression inventory. Psychopharmacology Bulletin, 21, 955-988.

22.

Lesniak-Karpiak, K., Mazzocco, M. M. M., & Ross, J. L. (2003). Behavioral assessment of social anxiety in females with turner or fragile X syndrome. Journal of Autism and Developmental Disorders, 33(1), 55-67.

23.

Mazzocco, M. M. M. (1998). A process approach to describing mathematics difficulties in girls with turner syndrome. Pediatrics, 102(2), 492-496.

24.

Mazzocco, M. M. M., Baumgardner, T., Freud, L. S., & Reiss, A. L. (1998). Social functioning among girls with fragile X or turner syndrome and their sisters. Journal of Autism and Developmental Disorders, 28(6), 509-517.

25.

McCauley, E., Feuillan, P., Kushner, H., & Ross, J. (2001). Psychosocial development in adolescents with turner syndrome. Journal of Developmental & Behavioral Pediatrics, 22, 360-365.

26.

McCauley, E., Kay, T., Ito, J., & Treder, R. (1987). The turner syndrome: cognitive deficits, affective discrimination, and behavior problems. Child Development, 58, 464-473.

27.

McCauley, E., Ross, J., Kushner, H., & Cutler, G. (1995). Self-esteem and behavior in girls with turner syndrome. Journal of Developmental & Behavioral Pediatrics, 16, 82-88.

28.

McCauley, E., & Sybert, V. (2006). Social and behavioral development of girls and women with turner syndrome. International Congress Series, 93-99.

29.

McKenna, A. M., Keating, L. E., Vigneux, A., Stevens, S., Williams, A., & Geary, D. F. (2006). Quality of life in children with chronic kidney disease-patient and caregiver assessments. Nephrology Dialysis Transplantation, 21, 1899-1905.

30.

Murphy, M. M., & Mazzocco, M. M. M. (2008). Mathematics learning disabilities in girls with fraxile X or turner syndrome during late elementary school. Journal of Learning Disabilities, 41, 29-46.

31.

Pareren, Y. K., Duivenvoorden, H. J., Slijper, F. M. E., Koot, H. M., Drop, S. L. S., & Keizer-Schrama, S. M. P. F. (2005). Psychosocial functioning after discontinuation of long-term growth hormone treatment in girls with turner syndrome. Hormone Research, 63(5), 238-244.

32.

Rank M. B. (1999). Turner syndrome. European Journal of Endocrinology, 141, 216-217.

33.

Rickert, V. I., Hassed, S. J., Hendon, A. E., & Cunniff, C. (1996). The effects of peer ridicule on depression and self-image among adolescent females with turner syndrome. Journal of Adolescent Health, 19(1), 34-38.

34.

Ross, J. L., Roeltgen, D., & Zinn, A. (2006). Cognition and the sex chromosomes: studies in turenr syndrome. Hormone Research, 65, 47-56.

35.

Ross, J. L., McCauey, E., Roeltgen, D., Long, L., Kushner, H., Feuillan, P., & Cutler, GB Jr. (1996). Self-concept and behavior in adolescent girls with turner syndrome: potential estrogen effects. Journal of Clinical Endocrinology and Metabolism, 81(3), 926-931.

36.

Rovet, J. F. (1993). The psychoeducational characteristics of children with turner syndrome. Journal of Learning Disabilities, 26, 333-341.

37.

Rovet, J. F. (2004). Turner syndrome: a review of genetic and hormonal influences on neuropsychological functioning. Child Neuropsychology, 10(4), 262-279.

38.

Rovet, J. F., & Ireland, L. (1994). Behavioral phenotype in children with turner syndrome. Journal of Pediatric Psychology, 19(6), 779-790.

39.

Siegel, P. T., Clopper, R., & Stabler, B. (1998). The psychological consequences of turner syndrome and review of the national cooperative growth study psychological substudy. Pediatrics, 102, 488-491.

40.

Skuse, D. H., Cave, S., O’Herlihy, A., & South, R. (1998). Quality of life in children with turner syndrome: parent, teacher, and individual perspective. Measuring Health-Related Quality of Life in Children in Adolescents: Implications for Research and Practice, Mahwah, NJ: Lawrence Erlbaum Associates.

41.

Sybert, V. P., & McCauley, E. (2004). Turner's syndrome. Medical Progress, 351(12), 1227 -1238.

42.

Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL™ 4.0: reliability and validity of the pediatric quality of life inventory version™ 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800-812.

바로가기메뉴

Article Contents

Vol.15 No.3

Psychosocial Characteristics of Girls with Turner Syndrome and Age-matched Healthy Control

Abstract

Reference

The Korean Journal of Woman Psychology