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The Korean Journal of Health Psychology

  • KOREAN
  • P-ISSN1229-070X
  • E-ISSN2713-9581
  • KCI

A Study for the Standardization of the Korean Version of the Pediatric Quality of Life Inventory(PedsQLTM) 4.0 Generic Core Scales, Self-Report

The Korean Journal of Health Psychology / The Korean Journal of Health Psychology, (P)1229-070X; (E)2713-9581
2012, v.17 no.3, pp.677-695
https://doi.org/10.17315/kjhp.2012.17.3.007


Abstract

The purpose of this study was to evaluate the psychometric properties of the Pediatric Quality of Life Inventory (PedsQLTM) 4.0 generic core scales. A total of 3353 school-based children and adolescents in grades 3-12 and their 178 age-matched cancer survivors have completed the PedsQL. The confirmatory factor analysis revealed that the theoretically-based 5-factor structure of the PedsQL fits the data well. The PedsQL scores were also associated with acceptable internal consistency and test-retest reliability estimates, supporting the reliability of this instrument’s score. The validity of the PedsQL scores is also supported. Specifically, the total score of PedsQL correlated significantly with the Child Depression Inventory and the Revised Children’s Manifest Anxiety Scale. The PedsQL total score also significantly differed between the school-based sample and the cancer survivor sample. One-way ANOVA examining the PedsQL scores revealed that there are significant group differences between boys and girls as well as across grade levels. The means and standard deviations of the PedsQL scale scores are provided for each gender and grade level. Clinical and research implications as well as limitations are also discussed.

keywords
Health-related quality of life, PedsQL, standardization, 건강관련 삶의 질, PedsQL, 표준화

Reference

1.

구본용 (1989). 학교장면에서의 심리검사의 활용 현황.대학생활연구, 7, 15-35.

2.

구재선, 서은국 (2011). 한국인, 누가 언제 행복한가? 한국심리학회지: 사회 및 성격, 25(2), 143-166.

3.

국가통계포털 (2009). 보건복지부.

4.

국가통계포털 (2011). 보건복지부.

5.

김금순, 장지연, 정인숙 (2003). 장기이식 환자의 건강관련 삶의 질. 대한간호학회지, 33, 365-375.

6.

김만권 (2004). 학교심리학회: 심포지움; 학교장면에서의심리학적 서비스: 학교 장면에서의 심리 검사활용. 연차학술발표대회 논문집, 2004(1),389-390.

7.

김민희, 정경미, 이명아, 유철주, 원성철, 신윤정 (2011).경험논문: 소아암 생존자 집단과 건강통제 집단의 삶의 질과 문제행동 비교 및 부모보고와자기보고의 차이 연구. 한국심리학회지: 건강,16(3), 483-500.

8.

김성완, 신일선, 김재민, 유준안, 안용민, 권준수, 양수진, 윤진상 (2007). 단축형 항정신병약물치료 중 주관적 안녕감 척도의 표준화 연구. 대한정신약물학회지, 18(4), 221-230.

9.

김종남 (2008). 경험논문: 유방암 환자를 위한 통합적집단치료가 삶의 질과 정서상태에 미치는 장기적 효과. 한국심리 학회지: 건강, 13(2),513-536.

10.

김종남, 권정혜 (2006). 유방암 환자를 위한 통합적 집단치료가 삶의 질과 면역기능에 미치는 효과.한국심리학회지: 임상, 25(3), 639-655.

11.

김종남, 이란 (2008). 개관논문: 암 환자를 위한 심리사회적 개입 연구의 개관. 한국심리학회지: 건강,13(2), 329-357.

12.

박지희, 손정락, 박순권 (2011). 경험논문: 뉴로피드백훈련이 측두하악장애 환자들의 통증 감소, 수면의 질 및 삶의 질에 미치는 효과. 한국심리학회지: 건강, 16(1), 135-150.

13.

신미 (2012). 청소년 삶의 질 척도 타당화 연구. 청소년복지연구, 14(1), 163-194.

14.

염유식 (2011). 2011 어린이․청소년 행복지수 국제비교. 한국 방정환재단 & 연세대학교 사회발전연구소

15.

윤진상, 국승희, 이무석 (1998). 한국판 스미스클라인 비챰 ‘삶의 질’ 척도에 관한 예비연구. 신경정신학회, 37(2), 280-292.

16.

이지연, 손정락 (2009). 경험논문: 수용-전념 집단 프로그램이 성인 아토피 환자들의 생활 스트레스,상태불안 및 피부과적 삶의 질에 미치는 효과.한국심리학회지: 건강, 14(2), 465-480.

17.

이현주, 이미나, 최인수 (2008). 한국 청소년 안녕감 척도(K-WBSA)의 타당화 및 삶의 질 분석. 교육심리연구, 22(1), 301-315.

18.

이형석, 김도관, 고혜정, 구형모, 권의정, 김지혜 (2003).노인 삶의 질 척도의 표준화. 한국심리학회지:임상, 22(4), 859-881.

19.

전진수, 신강현, 김완석, 권정혜 (2008). 당뇨스트레스가우울에 미치는 영향. 한국심리학회지: 건강,12(4), 851-868.

20.

조수철, 이영식 (1990). 한국형 소아 우울척도의 개발.신경정신의학, 29(4), 943-956.

21.

최은석 (2005). 연구: 청소년의 건강관련 삶의 질 측정도구(PedsQLTM 4.0 Generic Core Scale)의 타당도, 신뢰도 검증. 간호학탐구, 14(1), 166-182.

22.

최진숙, 조수철 (1990). 소아불안의 측정: RCMAS의 신뢰도와 타당도 검사. 신경정신의학, 29(3),691-702.

23.

홍대우, 김춘경 (2006). 연구논문: 중학생용 전인건강 측정도구 개발. 청소년학연구, 13(6), 49-78.

24.

홍세희. (2000). 특별기고: 구조 방정식 모형의 적합도지수 선정기준과 그 근거. 한국심리학회지 임상, 19(1), 161-177.

25.

Cohen, J. (1988). Statistical power analysis for the behavioral science. (2nd Ed.). New Jersey: Lawrence Erlbaum Associates.

26.

Czyzewski, D. I., Mariotto, M. J., Bartholomew, L. K., LeCompte, S. H., & Sockrider, M. M. (1994). Measurement of quality of well being in a child and adolescent cystic fibrosis population. Medical Care, 32(9), 965-972.

27.

Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of disease in childhood, 84(3), 205-211.

28.

Feeny, D., Furlong, W., Barr, R. D., Torrance, G. W., Rosenbaum, P., & Weitzman, S. (1992). A comprehensive multiattribute system for classifying the health status of survivors of childhood cancer. Journal of Clinical Oncology, 10(6), 923-928.

29.

Felce, D., & Perry, J. (1995). Quality of life: Its definition and measurement. Research in developmental disabilities, 16(1), 51-74.

30.

Guyatt, G. H., Feeny, D. H., & Patrick, D. L. (1993). Measuring health-related quality of life. Annals of internal medicine, 118(8), 622-629.

31.

Holmes, W. C., & Shea, J. A. (1998). A new HIV/AIDS-targeted quality of life (HATQoL) instrument: develop- ment, reliability, and validity. Medical Care, 36(2), 138.

32.

Juniper, E. F, Guyatt, G. H, Ferrie, P. J, & King, D. R. (1999). Development and validation of a questionnaire to measure asthma control. European Respiratory Journal, 14(4), 902-907.

33.

Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J, Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35-46.

34.

Kook, S. H., & Varni, J. W. (2008). Validation of the Korean version of the pediatric quality of life inventoryTM 4.0 (PedsQLTM) generic core scales in school children and adolescents using the Rasch model. Health and Quality Life Outcomes, 6: 41.

35.

Kovacs, M. (1985). The Children’s Depression Inventory. Psychopharmachology Bulletin, 27, 955-988.

36.

Kobayashi, K., & Kamibeppu, K. (2010). Measuring quality of life in Japanese children: Development of the Japan- ese version of PedsQL, Pediatrics International, 52, 80-88.

37.

Landgraf, J. M, Abetz, L., & Ware, J. E. (1996). The CHQ user’s manual. Boston: The Health Institute, New England Medical Center.

38.

Lee, C. O. (1997). Quality of life and breast cancer survivors. Psychosocial and treatment issues. Cancer practice, 5(5), 309.

39.

Levi, R. B., & Drotar, D. (1999). Health-related quality of life in childhood cancer: Discrepancy in parent-child reports. International Journal of Cancer, 12, 58-64.

40.

Levin N., W., Brown, R. T., Pawletko, T .M., Gold, S. H., & Whitt, J. K. (2000). Social skills and psychological adjustment of child and adolescent cancer survivors. Psycho Oncology, 9(2), 113-126.

41.

Lundberg, L., Johannesson, M., Silverdahl, M., Hermansson, C., & Lindberg, M. (2000). Health-related quality of life in patients with psoriasis and atopic dermatitis measured with SF-36, DLQI and a subjective measure of disease activity. ACTA DERMATOVENEREOLOGICA- STOCKHOLM-, 80(6),430-434.

42.

Matza, L. S., Swensen, A. R., Flood, E. M., Secnik, K., & Leidy, N. K. (2004). Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value in Health, 7(1), 79-92.

43.

Michel, G., Bisegger, C., Fuhr, D. C., & Abel, T.(2009). Age and gender differences inhealth-related quality of life of children andadolescents in Europe: a multilevel analysis.Quality of Life Research, 18(9), 1147-1157.

44.

Montazeri, A., Gillis, C. R., & McEwen, J. (1998). Quality of life in patients with lung cancer. Chest, 113(2), 467-481.

45.

Mrus, J. M., Williams, P. L., Tsevat, J., Cohn, S. E.,& Wu, A. W. (2005). Gender differences inhealth-related quality of life in patients withHIV/AIDS. Quality of Life Research, 14(2),479-491.

46.

Palacio-Vieira, J. A., Villalonga-Olives, E., Valderas, J. M., Espallargues, M., Herdman, M., Berra, S., & Rajmil, L. (2008). Changes in health-related quality of life (HRQoL) in a population-based sample of children and adolescents after 3 years of follow-up. Quality of Life Research, 17(10), 1207-1215.

47.

Perrin, J. M., Kuhlthau, K., Chughtai, A., Romm, D., Kirschner, B. S., Ferry, G. D., & Baldassano, R.N. (2008). Measuring quality of life in pediatric patients with inflammatory bowel disease: psychometric and clinical characteristics. Journal of pediatric gastroenterology and nutrition, 46(2), 164.

48.

Reinfjell, T., Diseth, T. H., Veenstra, M., & Vikan, A.(2006). Measuring health- related quality oflife in young adolescents: reliability andvalidity in the Norwegian version of thePediatric Quality of Life Inventory 4.0(PedsQL) generic core scales. Health andQuality Life of Outcomes, 4, 61.

49.

Reinfjell, T., Hjemdal, O., Aune, T., Vikan, A. & Diseth, H. D. (2008). The Pediatric Quality of Life Inventory (PedsQLTM) 4.0 as as assessment measure for depressive symptoms: A correlational study with young adolescents. Nordic journal of Psychiatry, 62, 279-286.

50.

Reynolds, C. R., & Richmond, B. O. (1978). What I think and feel: A revised measure of Children’s Manifest Anxiety. Journal of Abnormal Child Psychology, 6(2), 271-280.

51.

Riedinger, M. S., Dracup, K. A., Brecht, M. L., Padilla, G., Sarna, L., & Ganz, P. A. (2001). Quality of life in patients with heart failure: do gender differences exist? Heart & Lung: The Journal of Acute and Critical Care, 30(2), 105-116.

52.

Roizen, M., Rodríguez, S., Bauer, G., Medin, G., Bevilacqua, S., Varni, J. W., & Dussel, V. (2008). Initial validation of the Argentinean Spanish version of the PedsQL 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings. Health and Quality of Life Outcomes, 6, 59.

53.

Schwimmer, J. B., Burwinkle, T. M., & Varni, J. W.(2003). Health-related quality of life ofseverely obese children and adolescents.JAMA: the journal of the American MedicalAssociation, 289(14), 1813-1819.

54.

Spieth, L .E., & Harris, C. V. (1996). Assessment of health-related quality of life in children and adolescents: an integrative review. Journal of Pediatric Psychology, 21(2), 175-193.

55.

Starfield, B., Ensminger, M., Riley, A., McGauhey, P., Skinner, A., Kim, S., & Green, B. (1993). Adolescent health status measurement: development of the Child Health and Illness Profile. Pediatrics, 91(2), 430-435.

56.

Stein, R. E. K., & Jessop, D. J. (1990). Functional status II (R): a measure of child health status. Medical Care, 1041-1055.

57.

Suh, E. M., Diener, E., & Updegraff, J. A. (2008). From culture to priming condition: Self-construal influences on life satisfaction judgments. Journal of Cross-Cultural Psychology, 39, 3-15.

58.

Testa, M. A., & Simonson, D. C. (1996). Assessment of quality-of-life outcomes. New England Journal of Medicine, 334(13), 835-840.

59.

Varni, J. W., Limbers, C. A., & Burwinkle, T. M.(2007). Impaired health-related quality of lifein children and adolescents with chronicconditions: a comparative analysis of 10disease clusters and 33 diseasecategories/severities utilizing the PedsQL™ 4.0Generic Core Scales. Health and quality oflife outcomes, 5(1), 43.

60.

Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQLTM 4.0: Reliability and validity of the Pediatric Quality of Life InventoryTM version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39(8), 800.

61.

Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D.(2003). The PedsQL™* 4.0 as a PediatricPopulation Health Measure: Feasibility,Reliability, and Validity. AmbulatoryPediatrics, 3(6), 329-341.

62.

Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, P. (2002). The PedsQL™ in pediatric cancer. Cancer, 94(7), 2090-2106.

63.

Varni, J. W., Burwinkle, T. M., Rapoff, M. A., Kamps, J. L., & Olson, N. (2004). The PedsQL™ in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory™ generic core scales and asthma module. Journal of behavioral medicine, 27(3), 297-318.

64.

Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQL™ in type 1 and type 2 diabetes. Diabetes care, 26(3), 631-637.

65.

Varni, J. W., Seid, M., Smith K., T., Burwinkle, T., Brown, J., & Szer, I. S. (2002). The PedsQL™ in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ Generic Core Scales and Rheumatology Module. Arthritis & Rheumatism, 46(3), 714-725.

66.

Ware, J. E., Snow, K. K., Kosinski, M., & Gandek, B.(1993). SF-36 health survey manual andinterpretation guide. Boston: The HealthInstitute, New England Medical Center.

67.

World Health Organization (1948). The Constitution ofWorld Health Organization. WHO Chronicals,1, 29.

68.

Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life. JAMA: the journal of the American Medical Association, 273(1), 59-65.

69.

Xu, T., Wu, Z., Yan, Z., Rou, K., & Duan, S. (2010). Measuring health-related quality of life in children living in HIV/AIDS-affected families in rural areas in Yunnan, China: preliminary reliability and validity of the Chinese version of PedsQL™ 4.0 Generic Core Scales. Journal of acquired immune deficiency syndromes, 53(Suppl 1), S111-S115.

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