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The Korean Journal of Health Psychology

Analyses of Psychological Stress and Coping of Parents of Children with Tourette’s Disorder

The Korean Journal of Health Psychology / The Korean Journal of Health Psychology, (P)1229-070X; (E)2713-9581
2020, v.25 no.1, pp.153-185
https://doi.org/10.17315/kjhp.2020.25.1.009


Abstract

The purpose of this study was to develop the substantive theory on the psychological stress and coping of parents of children older than age 16 with Tourette's disorder. For this study, 10 parents of children with Tourette’s disorder were interviewed and a grounded theory study was conducted to examine the psychological stress and coping of the parents. From the analyses, 15 categories emerged including ‘feeling that everything is collapsing’, ‘confronting endless concern’. The core category that represents the stress and coping of parents of children with Tourette’s disorder was ‘coming and going between the role of a protector and a supporter while concering endlessly’. This represents the process of coming and going between the role of a protector and the role of a supporter according to the extent of the symptoms of Tourette’s disorder. The theoretical scheme was described by organizing categories around the core category. The analysis of ‘coming and going between the role of a protector and a supporter while concerning endlessly’ over time revealed that the parents of children with Tourette’s disorder experienced the following process, managing and protecting, searching and developing careers, teaching and training, growing to believe. After the continual comparison of data, the theoretical model of the stress and coping of parents of children with Tourette’s children was developed. Finally, the implications and limitations of this study are discussed.

keywords
Tourette’s disorder, parents, stress, coping, grounded theory, 뚜렛장애, 부모, 스트레스, 대처, 근거이론

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