뚜렛장애 자녀 부모의 심리적 스트레스 및 대처에 관한 질적 분석
Analyses of Psychological Stress and Coping of Parents of Children with Tourette’s Disorder
탁진국 (광운대학교)
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초록
본 연구의 목표는 고등학교 이상의 뚜렛장애 자녀 부모의 심리적 스트레스와 대처에 관한 실체이론을 개발하는 것이다. 10명의 부모를 대상으로 인터뷰를 진행하였고 근거이론방법에 의해 분석하였다. '모든 것이 무너지는 느낌', '끊임없는 염려와 마주하기'를 포함한 15개의 범주가 분석되었다. 분석결과 고등학교 이상의 뚜렛장애 자녀를 둔 부모들은 '끊임없이 염려하며 보호자와 지지자 역할을 오고 가기'를 핵심적으로 경험하는 것으로 드러났다. 이는 뚜렛장애 자녀의 부모가 병의 경과에 따라 보호자 역할을 하거나 지지자 역할을 하면서 자녀를 지원하려고 노력함을 나타낸다. 또한 뚜렛장애 자녀 부모들은 자녀의 상태에 따라 관리하고 보호하는 단계, 진로 탐색과 개발단계, 가르치고 훈련하는 단계, 믿어주기 단계를 오고 가는 것을 보여주었다. 모든 자료를 분석적으로 검토한 후 뚜렛장애 자녀 부모의 심리적 스트레스와 대처에 관한 이론적 모형을 개발하였으며 마지막으로 연구의 의의와 시사점, 제한점을 기술하였다.
- keywords
- Tourette’s disorder, parents, stress, coping, grounded theory, 뚜렛장애, 부모, 스트레스, 대처, 근거이론
Abstract
The purpose of this study was to develop the substantive theory on the psychological stress and coping of parents of children older than age 16 with Tourette's disorder. For this study, 10 parents of children with Tourette’s disorder were interviewed and a grounded theory study was conducted to examine the psychological stress and coping of the parents. From the analyses, 15 categories emerged including ‘feeling that everything is collapsing’, ‘confronting endless concern’. The core category that represents the stress and coping of parents of children with Tourette’s disorder was ‘coming and going between the role of a protector and a supporter while concering endlessly’. This represents the process of coming and going between the role of a protector and the role of a supporter according to the extent of the symptoms of Tourette’s disorder. The theoretical scheme was described by organizing categories around the core category. The analysis of ‘coming and going between the role of a protector and a supporter while concerning endlessly’ over time revealed that the parents of children with Tourette’s disorder experienced the following process, managing and protecting, searching and developing careers, teaching and training, growing to believe. After the continual comparison of data, the theoretical model of the stress and coping of parents of children with Tourette’s children was developed. Finally, the implications and limitations of this study are discussed.
- keywords
- Tourette’s disorder, parents, stress, coping, grounded theory, 뚜렛장애, 부모, 스트레스, 대처, 근거이론
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